Klinični oddelek za otroško, mladostniško in razvojno nevrologijo » obvestilo

Glavobol pri otroku in mladostniku

Damjan — Thu, 20 Oct 2011 19:52:08 +0000

Sekcija za otroško nevrologijo in Klinični oddelek za otroško, mladostniško in razvojno nevrologijo Pediatrične klinike prirejata delavnico o glavobolu pri otroku in mladostniku, dne 18.11.2011, z namenom osvežiti klinične smernice obravnave vsem, ki vas to področje zanima.

» Program: Glavobol pri otroku in mladostniku

6th Practical Postgraduate Epilepsy School

Damjan — Tue, 18 Oct 2011 19:38:57 +0000

SLOVENIAN LEAGUE AGAINST EPILEPSY

Ulica stare pravde 2, SI-1000 Ljubljana, Slovenia

Spletna stran: www.epilepsija.org

e-pošta: epilepsija@epilepsija.org

6th Practical Postgraduate Epilepsy School

(International conference in tradition of Ecole Pratique Jean Bancaud

Preddvor, October 20th – 22th 2011

Faculty: Bartolomei F., Canevini M. P., Cavanna A. E., Chauvel P., Čelan Stropnik S., Delalande O., Feucht M., Fohlen M., Gosar D., Grošelj J., Lax Pericall T., Lorber B., Koch Stoecker S., Kržan M., Kumperščak H., Marusič P., Pauli E., Ravnik I. M., Tomori M., Tretnjak V., Ziherl S.

Thursday, October 20th 2011

Symposium: NEUROPSYCHIATRY OF EPILEPSY

08.15	Opening
08.30	Psychopathology in people with epilepsy: neurobiological – clinical correlations (A. E. Cavanna)
09.15	Differential diagnosis of epilepsy – related psychiatric disturbances and episodic psychiatric disorders that may mimic epilepsy (M. P. Canevini)
10.00	Discussion
10.15	Coffee
10.45	Psychiatric co – morbidity in children with epilepsy (T. Lax Pericall)
11.15	Neuropsychopharmacology: Effect of combined use AEDs and psychotrophic drugs in in children and adolescents with epilepsy (H. Kumperščak)
11.30 11.45	Neuropsychopharmacology: Effect of combined use AEDs and psychotrophic drugs in adults with epilepsy (S. Čelan Stropnik, J. Kordič)Perception of side – effects in epilepsy patients and depression (P. Marusič)
12.00	Break
12.1512.30 12.40	Legal psychiatric aspects: epilepsy and behaviour (S. Ziherl / M. Tomori)Psychological effects of VNS in people with epilepsy and psychiatric disorders (literature) ? KRŽAN et al CONFIRMATION PENDING Epilepsy and suicide LORBER et al.
12.50	What is available? What works? Indications for psychotherapy, behavioural and sociotherapy and neuropsychological rehabilitation in patients with epilepsy (A. E. Cavanna)
13.20	Discussion
13.30	Lunch
15.00 15.15	Psychosocial risk factors for mental and developmental disorders in children and adolescents with epilepsy (M.Tomori et al)From multicausality to coordinated multidisciplinary management in children with epilepsy and psychiatric co – morbidity (T. Lax Pericall) PENDING
15.45	Neuro – surgery of epilepsy and surgical approaches in various neuropsychiatric syndromes (classical surgery, DBS, VNS, …) (O. Delalande)
16.15	Coffee
16.30	Emotion and affect in temporal lobe epilepsy and its postoperative changes (E. Pauli)
16.45	Why do we speak about epilepsy and (neuro)psychiatry here and now? (I. M. Ravnik, J. Grošelj)
17.00	Roundtable: We have a common patient out there: problems in comprehensive care between neurology, psychiatry, neuropsychiatry, psychology, social work. What is really done? Overview of existing structures supporting multidisciplinary management of people with epilepsy with psychiatric co – morbidity in the countries of the region / adults, children and adolescents. Examples of good comprehensive neuropsychiatric practice (pediatric, adult) in institution, in the community FACULTY
17.45	Discussion
18.00	Adjourn

6^TH PRACTICAL POSTGRADUATE EPILEPSY SCHOOL

19.30

20.15

20.45

Neuro- anatomo – psycho – physiological substrates of normal behaviour and cognition and their dysfunctions (Z. Pirtošek)From anatomo – electrical hypothesis to clinical practice and real life with cognitive / emotional / behavioural co-morbidity in children with severe epilepsy (I. M. Ravnik)

Meet over a glass of wine, fruits and cheese

Friday, October 21st 2011

8.00	Neuroanatomo / psycho / physiological substrates for dysfunctional behaviour and cognition in people with epilepsy and psychiatric co – morbidity (A. E. Cavanna)
8.45	Fear in epilepsy. A contribution o understand behavioural and cognitive symptoms in people with epilepsy according to localizations (F. Bartolomei)
9.15	Coffee
9.30	Parallel workshops in small groups
	Workshop 1Pediatric: Patient with epilepsy and cognitive / behavioural / psychiatric co – morbidity (NES included), candidate for surgery – pre-surgical epilepsy monitoring and surgical decisions (include psychotic, aggressive, depressed, NES, GGsy, … cases contributed (M. Fohlen, ?M. Feucht, ?I. M. Ravnik)
	Workshop 2Adult: Patient with epilepsy and cognitive / behavioural / psychiatric co – morbidity (NES included), candidate for surgery – pre-surgical epilepsy monitoring and surgical decisions (include psychotic, aggressive, depressed, NES, GGsy, …patients contributed (M. P. Canevini, P. Marusič, F. Bartolomei ?, P. Cauvel ?)
11.30	Case reports
12.30	Lunch
14.30	Parallel workshops in small groups 1,2 EXCHANGE
15.30	Coffee
15.45	Parallel workshops in small groups CONTINUE
16.45	Workshops report
17.15	Case reports
18.15	Is it possible to predict postoperative psychiatric course and postoperative seizure – outcome by pre-surgical psychiatric morbidity and are there effective therapeutic instruments to cope with it? (Is it possible to prevent psychiatric co – morbidity (to occur, to deteriorate) during pre-surgical, surgical and post-surgical phases) (S. Koch Stoecker)
19.00 19.45	Frontiers between epilepsy and psychiatry : example of postictal psychosis (P. Chauvel)Adjourn
20.30	Social event

Saturday, October 22th 2011

08.30	Workshops
08.30	Workshop 3Anatomo – electro – clinical correlations (AECC) in epileptic syndromes with cognitive symptomatology (”encephalopathies”) – differential diagnosis with lesional epilepsies (children, adults) (include LKS, IS, atyp Rolandic, temporal w clinical suggesting generalized, frontal, double pathology – pitfalls, chances of surgery) (M. Fohlen, O. Delalande, I. M. Ravnik, J. Grošelj, V. Tretnjak, et al)
09.3010.00	CoffeeWorkshop 4 Practical management of a patient with cognitive / behavioural /psychiatric co – morbidity in an epilepsy monitoring unit (M. Feucht, P. Marusič, S.Koch Stoecker)
11.00	Specific questions on surgical candidates with psychiatric co – morbidity and / or intellectual disability guided discussion of submitted selected Case reports Moderated by M. Fohlen, S. Koch Stoecker, A. E. Cavanna, T. Lax Pericall, O. Delalande
12.30	Lunch
14.30 14,45	Cognitive / emotional/ behavioural phenomena (incl. complications) in epilepsy patients and family members during pre-surgical and surgical management of severe epilepsy in a foreign linguistic/cultural environment (V. Tretnjak, D. Gosar)Open forum on epilepsy and psychiatry, neuropsychiatry, liaison, role of psychiatrist, clinical / neuro/ psychologist in the team (S. Koch Stoecker, M. Feucht, M. Fohlen, P. Marusič, E. Pauli, V. Tretnjak, I. M . Ravnik)
16.00	Coffee
16.15	Epilepsy surgery in a patient with intellectual disability or / and psychiatric comorbidity, surgeonś experience and views (O. Delalande)
16. 45	Beyond epilepsy and psychiatry – Philosophy of / from the implanted brain – new approaches to understand brain in function and disease (P. Chauvel)
17.15	General discussion
17.45	Feedback
18.00	Adjourn

Sinapsina nevroznanstvena konferenca

Damjan — Thu, 15 Sep 2011 18:31:37 +0000

Med 22. in 25. septembrom bo v Cankarjevem domu:

9 posebnih in plenarnih predavanj
15 tematskih simpozijev
okoli 200 posterjev
prek 100 predavateljev
skoraj 500 registriranih udeležencev iz 45 držav

Sinapsina nevroznanstvena konferenca ’11 je najpomembnejši evropski nevroznanstveni dogodek letos, zato ga ne velja zamuditi.

Vabimo pa vas še na spremljajoče dogodke:

Forum mladih nevroznanstvenikov 22. septembra na Medicinski fakulteti v Ljubljani
Predavanje v spomin prof. Andreja O. Župančiča 22. septembra ob 16:00 v Cankarjevem domu
Posvet o etičnih dilemah v nevroznanosti 22. septembra ob 18:15 v Cankarjevem domu (odprt za javnost)
Izobraževalna delavnica o kognitivni nevroznanosti 24. septembra v Cankarjevem domu
Tečaj elektromiografije, mikroelektromiografije in ultrasonografije živcev 23.-25. septembra s 27. predavanjem v spomin dr. Janeza Faganela o miasteniji gravis
Klinični satelitski simpoziji 23. in 24. septembra o odkrivanju in zdravljenju demenc, o nevroplastičnosti pri duševnih motnjah in o rezistentnih epilepsijah v sodelovanju z Združenjem nevrologov in Združenjem psihiatrov SZD (prost vstop)

Vsi dogodki SNC’11 so v postopku za dodelitev kreditnih točk za stalno podiplomsko izobraževanje pri Zdravniški zbornici Slovenije.

Evropski nevroznanstveniki bodo čez 10 dni v Cankarjevem domu. Pridružite se jim tudi vi!

SiNAPSA, Slovensko društvo za nevroznanost

» SNC11_Book_of_Abstracts

Predavanja ob dnevu redkih bolezni

Damjan — Sun, 21 Feb 2010 22:24:34 +0000

Ob pobudi Evropskega združenja za redke bolezni, ki je 28. februar proglasilo za Dan redkih bolezni, vas vabimo na praznovanje tega dne in

TISKOVNO KONFERENCO,

ki bo v četrtek 25. februarja 2010 ob 11. uri v predavalnici Pediatrične klinike na Bohoričevi 20 v Ljubljani.

Na konferenci se bomo tokrat osredotočili na cistično fibrozo, fabryjevo bolezen in pompejevo bolezen. Tiskovno konferenco bo odprl državni svetnik Boris Šuštaršič, ki bo, tudi kot predsednik reprezentativne invalidske organizacije Društva distrofikov Slovenije, spregovoril o pomenu interesnega združevanja obolelih. Na tiskovni konferenci bodo sodelovali strokovnjaki za področje teh bolezni, to so mag. Andreja Borinc Bedenc, dr.med., doc. dr. Barbara Salobir, prim. asist. Bojan Vujkovac, asist. mag. Lea Leonardis, dr. med. in gospa Slavka Grmek Ugovšek.

Tiskovno konferenco bo vodil Borut Pogačnik (ZIFS).

Po vrsti že tretje praznovanje Dneva redkih bolezni je namenjeno zavedanju tako zdravstva kot širše javnosti, da je potrebno organizirano skrbeti tudi za ljudi, ki jih zadevajo redke bolezni in jim nuditi ustrezno zdravstveno zaščito. Moto letošnjega Dneva redkih bolezni je posvečen sodelovanju med obolelimi in raziskovalci za boljšo kvaliteto življenja.

Lepo pozdravljamo,
Andreja Šuštar

Program

Boris Šuštaršič – uvodni pozdrav in o pomenu interesnega združevanja obolelih
Asist. mag. Lea Leonardis o Pompejevi bolezni (o obolenju, posledicah, načini zdravljenja in težave povezan s tem, število obolelih)
Bolnik s Pompeovo boleznijo (s kakšnimi težavami se srečuje)
Prim. asist. Bojan Vujkovac o Fabryjevi bolezni (o obolenju, posledice, načini zdravljenja, število obolelih, težave obolelih)
Mag. Andreja Borinc Beden o cistični fibrozi pri otrocih (o obolenju, posledice, načini zdravljenja, število obolelih)
Doc. dr. Barbara Salobir o cistični fibrozi v odrasli dobi (pojavnost, posledice, načini zdravljenja, število obolelih)
Gospa Slavka Grmek Ugovšek o društvu za cistično fibrozo, kaj nudi obolelim, s kakšnimi težavami se srečujejo oboleli

Lep pozdrav
Prof. dr. David Neubauer, dr. med.

Študentje pravne in medicinske fakultete poklonili 3450€

Damjan — Thu, 31 Dec 2009 13:41:25 +0000

Študentje pravne in medicinske fakultete so tudi letos, kot že nekaj let zapovrstjo, zbirali prostovoljne prispevke za Ustanovo za otroško nevrologijo. Letos so zbrali 3450€, ki jih bomo porabili za ureditev prostorov za nevrološko ambulanto.

Za njihov altruizem in zagnanost se jim najlepše zahvaljujemo.

Pomoč v obliki dohodnine

Damjan — Wed, 30 Dec 2009 10:55:03 +0000

Spoštovani,

namesto v državni proračun lahko 0.5% dohodnine, ki jo od vas v vsakem primeru vzame država, namenite Ustanovi za otroško nevrologijo, ki pomaga otrokom z nevrološkimi zdravstvenimi težavami. Če se v lanskem letu ali do sedaj še niste odločili za namenitev dela dohodnine, lahko to storite kadarkoli.

Vaša odločitev za vas ne predstavlja nikakršne dodatne finančne oziroma davčne obremenitve.

Ulica stare pravde

Damjan — Mon, 17 Aug 2009 17:29:35 +0000

V dogovoru s strokovnim direktorjem, prof. dr. Rajkom Kendo, dr. med. in poslovno direktorico PeK, ga. Diano Cesar Plaz, univ.dipl. prav., obveščamo, da prostori na ulici Stare pravde 4 in 2 ostajajo v uporabi KO za otroško, mladostniško in razvojno nevrologijo.

O dogovoru je obveščena »varnostna služba«, ki bo zagotavljala varovanje stavbe vsak delovni dan, od 08.00 – 17.00 ure.

Prof. dr. DAVID NEUBAUER, dr. med.

PREDSTOJNIK KLINIČNEGA ODDELKA ZA OTROŠKO, MLADOSTNIŠKO IN RAZVOJNO NEVROLOGIJO

Follow-up of Premature Infants

Damjan — Thu, 16 Apr 2009 06:31:49 +0000

IPOKRATES: Follow-up of Premature Infants

Date: November 24 – 26, 2009; starts at 09:00 a.m.
Place: Athens, Greece

» Program v PDF obliki

Objectives

This seminar will deal with basic mechanisms of brain injury and brain plasticity after such injury in preterm and term neonates. The early consequences will be presented in detail, especially regarding the neonatal convulsions and risk to develop future postneonatal epilepsy. The long term outcome will be presented with special concern on quality of life in survivors of neonatal intensive care and function in adulthood. Different ethical issues will also be presented, especially regarding withholding and withdrawing treatment as well as the question how far we still can go with preterm labour.

Lecturers

Mizrahi E, Baylor College of Medicine, Houston, Texas, USA
Kostović I, Croatian Institute of Brain Research, University of Zagreb, Medical School, Croatia
Casteloe K, Neonatal Unit, Homerton University Hospital, Homerton, UK
Saigal S, Neonatal Follow-UpProgramme, McMaster University, Hamilton, Ontario, Canada
Haataja L, University of Turku, Finland

Program

TUESDAY, NOVEMBER24, 2009
09:00 What is perinatal brain damage? Kostovic I
10:00 The EPIcure study: outcomes for children born at threshold of viability Casteloe K
11:00 Break
11:30 EEG, CFM and EEG-video monitoring in at-risk neonates     Mizrahi E
13:00 Lunch Time
14:30 Brain vulnerability I: leukomalacia that can damage cortical pathways    Kostovic I
15:30 How to reduce the frequency of preterm labour and increase the quality of survivors Casteloe K
16:30 Break
17:30 Outcomes of IVF pregnancies: impact on health care systems and family Saigal S
18:30   Discussion day 1
19:00 Dinner

WEDNESDAY, NOVEMBER25, 2009
09:00 Brain vulnerability II: lesions on the fronto-limbic system Kostovic I
10:00 Neonatal seizures: etiology, treatment and prognosis Mizrahi E
11:00 Break
11:30 Withdrawal / withholding of life sustaining and limitation of treatment in Casteloe K
intensive tertiary care units
13:00 Lunch Time
14:30 Can neurological scores predict outcome? Haataja L
15:30 Promoting early brain development in high-risk infants Saigal S
16:30 Break
17:00 Neonatal seizures: characterization, classification and clinical recognition Mizrahi E
18:00 Discussion day 2

THURSDAY, NOVEMBER26, 2009
09:00 Outcomes for the VLBW infants; anything new? Haataja L
10:00 Adult functioning of very preterm infants Saigal S
11:00 Break
11:30 Quality of life in survivors of neonatal intensive care Saigal S
12:30 Final discussion
13:00 End

14. Mediterranean Meeting of Child Neurology

Damjan — Wed, 08 Apr 2009 08:27:57 +0000

14th Mediterranean Meeting of Child Neurology

Marsala, Sicily, May 28th – 30th 2009

PRELIMINARY PROGRAM
(UPDATED 07.04.2009)
MAY 28TH, 2009

13.00 – 14.00 Registration
14.00 Welcome address and opening remarks (Paolo Curatolo, Italy)

14.15 – 16.15 Section 1 – Epilepsy
Chairpersons: Maurizio Elia (Italy), Meral Topcu (Turkey)
➢ Epilepsy and ADHD (Orvar Eeg-Olofsson, Sweden)
➢ Epilepsy and Autism (Caterina Cerminara, Italy)
➢ Epilepsy and childhood migraine (Antigone Papavisiliou, Greece)
➢ Epilepsy in the neurometabolic disorders (Paolo Balestri, Italy)
➢ Discussion

16.30 – 18.30 Section 2 – Neurometabolic – neurogenetic disorders
Chairpersons: Vlatka Bosniak (Croatia), Sotiris Yourokos (Greece)
➢ MRS in the diagnosis of hereditary neurometabolic disorders (Meral Topcu, Turkey)
➢ Leucodistrophies (Chahnez Trikki, Tunisia)
➢ Congenital muscular dystrophies and congenital myopathies (Bernard Echenne, France)
➢ Phenotypic variability and genetic background of 6PTPS deficiency (Vincenzo Leuzzi, Italy)
➢ Discussion

18.30 – 19.15 Section3
Chairpersons: Paolo Curatolo (Italy), Shaul Harel (Israel)
➢ 18.30 – 19.15 The history of the Mediterranean Meeting of Child Neurology (Miko Velickovic, Slovenia)

19.15 Welcome reception

MAY 29TH, 2009

08.30 – 09.00 Registration

09.00 – 11.00 Section 4 – Developmental disabilities
Chairpersons: Antigone Papavisiliou (Greece), Ibrahim Shoukry (Egypt)
➢ Intrauterin growth retardation (Shaul Harel, Israel)
➢ Mental retardation (Cinzia Galasso, Italy)
➢ Frontal dysfunctions in ADHD (Lieven Lagae, Belgium)
➢ An fMRI study of frontostriatal circuits during the inhibition of eye blinking in persons with Tourette syndrome (Luigi Mazzone, Italy)
➢ Discussion

11.15 – 12.45 Section 5 – Neuropediatrics
Chairpersons: Bernard Echenne (France), Lorenzo Pavone (Italy)
➢ Multiple Sclerosis in Children (Banu Anlar, Turkey)
➢ Acute Disseminated Encephalomyelitis (Sotiris Yourokos, Greece)
➢ Movement Disorders in Neurometabolic Diseases (Neziha Khouja, Tunisia)
➢ Discussion

Lunch Time and poster session

13.30 – 15.00 Free presentations
➢ Psychogenic dystonia in children (H. Benrhouma, Tunisia)
➢ Additive effect of valproic acid and levetiracetam in pentylentetrazol-induced seizures in rats (G. Coppola, Italy)
➢ Abnormal parieto-motor connectivity in Tuberous Sclerosis Complex (R. Moavero, Italy)
➢ Deletion 2p25.2: a cryptic chromosome abnormality in a patient with autism and mental retardation detected using aCGH (A. Lo Castro, Italy)
➢ Limb-girdle muscolar dystrophy (N. Zeka, Kosovo)
➢ Neonatal outcome of children born to women with active epilepsy on mono-therapy versus poly-therapy (I. Prpic, Croatia)
➢ Cerebral arterial aneurysms in children (V. Sabolic Avramovska, Macedonia)
➢ Neuropsychological profile in a patient with bilateral periventricular nodular heterotopia (R. Siracusano, Italy)

15.30 Social program
• visit to Mozia Island
• social dinner

MAY 30TH, 2009

08.30 – 09.00 Registration

09.00 – 11.00 Section 6 – Developmental disabilities
Chairpersons: Banu Anlar (Turkey), Marcello Vitaliti (Italy)
➢ Neurogenetic syndromes with microcephaly (Giovanni Corsello, Italy)
➢ Tourette Syndrome (Renata Rizzo, Italy)
➢ Motor performances in children affected by tic disorder (Francesco Cardona, Italy)
➢ Striking improvement of Restless Leg Syndrome with Levetiracetam in ADHD children (Rosalia Silvestri, Italy)
➢ Discussion

11.15 – 13.00 Section 7 – Intractable epilepsy
Chairpersons: Orvar Eeg-Olofsson (Sweden), Chahnez Trikki (Tunisia)
➢ Intractable epilepsies (Paolo Curatolo, Italy)
➢ Myoclonic-astatic epilepsy (Ibrahim Shoukry, Egypt)
➢ Ketogenic diet in catastrophic epilepsy (GianGennaro Coppola, Italy)
➢ VNS in pharmacoresistant epilepsy (Emilio Franzoni, Italy)
➢ Discussion

Lunch time and poster session

14.00 – 15.30 Free presentations of selected posters and AITA award

15.30 Conclusions and social program

Otroci in starši o sodelovanju v raziskavah

Damjan — Thu, 02 Apr 2009 21:17:30 +0000

Vljudno vas vabimo, da odgovorite na vprašalnik o sodelovanju otrok v kliničnih raziskavah. Gre za evropski projekt namenjen temu, da bi bilo sodelovanje med otroci/starši in zdravniki čim bolj plodno. Vsi starši in mladostniki nad osem let ste vljudno vabljeni k sodelovanju. Vprašalnik lahko po novem najdete tudi v slovenskem jeziku. Kliknite prosim nas spodnjo povezavo.

» RESPECT