What is Foundation of Child Neurology?

(constitutive member of Association of Slovene Foundations)

The Foundation of Child Neurology in Slovenia has been established in 1997 on the initiative of the Department of Pediatric Neurology at the Childrens’ Hospital Ljubljana. As a non-governmental institution it aimed primarily to improve the quality of the functional diagnostics in child neurology that is to support financially the purchase of costly modern equipment, which could not be supplied from the regular hospital budget. Such equipment was aimed at better detection and diagnostics of sleep disturbances, cardiorespiratory abnormalities during sleep, sensorial deficits and cognitive (dys)functions as well as more complex epilepsy diagnostics.

On the other hand we felt that the standard of care at both inpatient units (for infants and toddlers and schoolchildren and adolescents respectively) should be improved in view of more children (and their parents) friendly hospital. This can be achieved only through additional financial support for improvement of the living conditions (proper climatization, sleeping chairs for the parents staying overnight at the bed) as well as donations (e.g. toys, computer games, books, TV and music sets).

Foundation has recently participated at the educational level in the field of child neurology: support of visits from outstanding lecturers from abroad, financial support of education abroad of young researchers, co-organization of symposia and congresses and publishing several booklets on special topics of child neurology and neurophysiology.

Since December 5th, 2000 the foundation has become one of the 11 constitutional members of the Association of Slovene Foundations.

Address and Numbers:

Ustanova za otroško nevrologijo
Pediatrična klinika v Ljubljani
Bohoričeva 20
1525 Ljubljana

e-mail: pednevro@kclj.si

Telephone No.: +386.1.5229.272
Fax. No.: +386.1.5229.357

Account No. for donations from Slovenia and abroad: 02014-0017303503

Who are we?

The board is constituted from 11 members who met regularly to discuss current strategies for collecting financial resources and donations as well as sponsorships.

Prof. David Neubauer, MD, PhD
President
Dalmatinova 10
1000 Ljubljana

 

and the constitutive members:
Mojca Sajovic, Metka Piskar, Damjan Osredkar, Valerija Uršič, Majda Tominšek and Tadeja križnar Jamnikar (also parents’ representative)

 

Previous Board Members

Erika Braniselj (until 2001),Alojzija Roženbergar (until 2001), Tomo Vojnovič (until 2001)
Peter Stavanja (unitl 2008), Marjan Štimec (until 2008), Miro Denislič (until 2008), Sonja Orehek (until 2008) and Alenka Vračko (unitl 2008)

Wish to join us?
Please write to pednevro@kclj.si.

What have we already accomplished?

Since the establishment of our fund the financial support enabled us to participate with 75% share of financial sources to buy new equipment for sensory encephalography which improved early detection of sensorial deficits and urged us to begin with the diagnostics of early cognitve neurophysiological studies in infants and toddlers.

Recently the fund has just completed the 100% financial deposit to the University Medical Centre – Childrens Hospital for the acquisition of the videoelectroencephalogram which will enable our child neurologists and neurophysiologists for earlier and more reliable detection of epileptic seizures in small children as well as to better document nonepileptic phenomena in older children and adolescents and for better follow-up of children and adolescents with intractable epilepsies.

The individual donators also donated us some of the precious equipment for cardiorespiratory diagnostics, especially in infants with life-threatening episodes and in older children with sleep disordered breathing (obstructive sleep apnoea): company Hermes-plus from Slovenia donated Hewlett Packard’s Viridia M3, while the company Vasco donated Novametrix for continuous oxygen saturation measurements.

The financial support of the foundation enabled the Department to organize Postgraduate Courses on Child Neuology at the School of Medicine in Ljubljana and to organize Ipokrates Seminar on Child Neurology in April 2001 as well as European Pediatric Sleep Club in October 2001. We have organized as well Syposium “From clumsiness to cerebral palsy” with dr Mijna Hadders-Algra from Groningen, NL in March 2002.The foundation has supported the publication of the Booklets on Child Neurology in 1998, 1999, 2000 and 2002.

Prof. David Neubauer, MD, PhD
President of the Foundation of Child Neurology

What are we going to do?

In the future we will organize a charity concert and continue with other activities to help raising the fund for new equipment:

  • improvement of the equipment for videotelemetry system (Telefactor);
  • purchase of the system for polysomnography – detection of sleep disturbances and sleep disturbed breathing (Ultrasom)
  • purchase of the ambulatory EEG system
  • purchase of aEEG
  • purchase of EP machine
  • now going on: purchase of Ultrasound machine

To help the fund for improving the conditions in the hospital(financial & donations):

  • sleeping chairs for parents to stay at the bed of their children
  • improvement of living conditions at both wards and at the laboratories· computer games for children, TV sets, audio sets etc.

To help the fund for educational activities:

  • symposium on Childhood and Adolescent Headache (November 2002)
  • Postgraduate Course on Child Neurology (October 2001 – June 2002)
  • Syposium on Neuromuscular disorders 2003
  • Ipokrates Symposium in 2003 and many others

Establishment of the Institute for Developmental Neuroscience

Donations

Foundation of Child Neurology and their members are grateful for the donations from:

MAJOR DONATIONS

Mobitel d.d.
(60% donation for ambulatory EEG)

Hermes – Plus
(full donation of HP’s Viridia M3 for the monitoring of life functions)

Radio HIT
(charity effort “Greetings to summer” for the purpose of buying an aEEG machine Nervus)

A Banka
(donation for new videoEEG machine and CMCRF machine)

Oven joiner’s trade
(full donation of the joiner equipment at the ward for schoolchildren and adolescents)

Mobitel
(40% donation for new videoEEG machine)

SCT
(10% donation of new videoEEG machine)

Vacso
(full donation of Novametrix for continuous oxygen saturation measurements)

OTHER DONATIONS

Enterprises
Adria Airways, ALBA, ATR računalniški inženiring, Baby Center, Banka Domžale, Banka Koper, Bauhaus, Bergrad Črnomelj, Commerce, Čeplak d.o.o., Debitel, Elektro Ljubljana, ELES d.o.o., Eli Lilly, Emona Merkur, Energo Plus, Generali, GEP Tika Trbovlje, Gorenjska Banka, Gospodarska zbornica Slovenije, GPT Novo mesto, Gradbeni inženiring, Gradis, Gral Marketing, Grand Hotel Union, HypoLeasing d.d., IMP Klima Montaže, Impol d.d., Intercommerce, Kapital Broker d.o.o., Kemofarmacija, Klima naprave RNE, Krka d.d., Krka d.o.o, KRKA Novo mesto, Lip Bled, LLT Murska Sobota, M & MM Novo mesto, Maximarket, med.over.net, Mestna občina Novo mesto, Merkur Zavarovalnica, Metalka trade, Mikro Polo, Nestle – Zepter Slovenija, Nieros Metal, Moda M d.o.o., NKB Maribor, Nova Ljubljanska banka, Novodom Novo mesto, Petrol, Philips, Plesk Brulc, Pokrajinska in študijska knjižnica, Porsche Leasing, Porsche Slovenija, Poštna Banka Slovenije, Revoz, Salonit Anhovo, Sindikat Autocommerce, Sirius, SKB, SKZ Novo mesto, Socomerc Sicon UPS, Spina d.o.o Novo mesto, SRC SI d.o.o., Technochem, Tehnounion, Teve varnost, Triglav, Trimo, Verk, Videoart, Zarja Novo mesto, Zebra Kranj, ZZZS, Žito Gorenjka.

Notaries
Nina Češarek, Andrej Dokler, Dravo Ferligoj, Kalinger, Marjana Kolenc Rus, Miro Košak, Sonja Kralj, Nada Kumar, Vojko Pintar, Jože Ratnik, Marina Ružič Tratnik in Nevenka Tory.

Individuals
Andrej Boštjančič, Aleš Dvorak, Zoran Ercegovič, Vilko Filač, Filipič I., Viktor Frelih, Marjela Glavina, Nikolaja Guzelj, Franci Jenko, Drago Kos, Simona Kozjek, David Kucler, Sabina Kucler, Janja Kuhar, Janja Kurbus, Madrino Dj., Janez Poljanec, Metka Wachter, Žibrat.

Donators of equipment and renovation of the developmental neurology department

COLOR d.d., Gorenje Notranja oprema d.d., Ham d.o.o., HELIOS d.d., HIT PRELESS d.o.o., JUB Kemična industrija d.d., KALCER d.o.o., KPL Gradnje, Rast, Ingeniring d.d., Montaža Škerjanec d.o.o., MOBITEL d.d., Paron d.o.o., Rotary Club Medvode, SITA RAM d.o.o., Slikopleskarstvo “Ciril Zupančič” s.p., Slikopleskarstvo “Jani” s.p., Slikopleskarstvo “Pav” s.p., STOL – pisarniški stoli d.o.o., ŠENK Trade d.o.o., VIJA terapija Naklo d.o.o..

Contributors for the treatment of chronically ill Janja M

NLB, TPV-Tadis doo, Plastoform doo, Adria Mobil, doo, Krašcommerce doo, TPV Avto doo, Revoz dd, TPV dd Novo mesto, Arsed doo, Malkom Novo mesto.

Foundation of Child Neurology thanks all of the contrubutors.

Wish to donate?
Please do not hesitate.

Account No. for donations from Slovenia and abroad: 02014-0017303503